Heather Krueger and Chris Dempsey's story inspired a movie - and that movie, Once Upon A  Christmas Miracle, inspired Len Hodder to become a living organ donor - twice. And now Len is sharing his story and inspiring others
 
Many patients on the transplant waitlist are hoping for their own Christmas miracle this year. Luckily we live in a world where miracles happen every day.
 
Hoping all your wishes come true! 
 
Happy holidays,
 
The Centre Team
@givelifeuhn @cst-transplant 

Coming Up

www.tmitt.ca

The holidays can be a difficult time for people on the transplant list and those who have lost a loved one. Join us December 16 at 12 noon Eastern for a conversation on grief and spiritual care with Psychotherapist and UHN Spiritual Care Practitioner, Stefan Pankiw.



In Case You Missed It

October was Liver Cancer Awareness Month. Below are highlights of work under way at Canada's largest research hospital to find a cure and help patients live longer, healthier lives. 

The Canadian Liver Foundation discusses  research on liver cancer with UHN clinician-researcher, Dr Mamatha Bhat. 
​​​Transplant oncology is giving new hope to liver cancer patients. Read about it here. And see touching Town of Ajax tribute to Jarret Singer's living donor, Nadine Young here.  

Hundreds of delicious recipes, cooking tips and nutrition information and live classes led by a wellness chef and registered dietitian - all on YouTube


For this year's Giving Tuesday, the Centre partnered with the Canadian Society of Transplantation (CST) and the Canadian Chamber of Commerce to step up the campaign to reduce financial barriers to living organ donation.

The collaboration produced a social media campaign to raise awareness of the CST Circle of Excellence featuring two short videos (above) and simple postcards (samples below), that can be shared via email and social media, including WhatsApp. 

Special thanks for our patient partners Joy MaGerry and Diane Peirce for sharing their stories, and Michael Peirce for making this campaign happen.

 

Over the coming year, the Centre will be doing shout outs to employers that provide paid leave and other support for living organ donors.

Do you have a manager or workplace that deserve recognition? Email livingorgandonation@uhn.ca.



ACB Organ Health YouTube Channel Showcases Diverse Voices 

The patients and creatives behind the ACB Organ Health YouTube Channel continue to produce content that highlights the journeys of people from the African, Caribbean and Black communities living with, or at elevated risk of organ failure. The initiative grew out of the A.C.T.I.O.N. project which aims to reduce barriers to transplant experienced by patients marginalized by race, ethnicity and other factors. Help spread awareness of the channel among patients and professionals - the URL is bit.ly/ACBorganhealth. If you have suggestions for content or speakers, or would like to become involved, please email acborganhealth@gmail.com

Sickle cell disease affects over 100 million people, including some 6,000 Canadians. Two thirds of Canadian children born with this disease live in Ontario. Ulysse Guerrier explains impact on organ health ...
Fadia’s journey through kidney disease, motherhood and kidney transplant was not easy. In this original documentary, Fadia tells her story and what nurtures ...
Charles Cook was born with hypertropic cardiomyopathy. He speaks about his condition, two transplants, multiple surgeries and what motivates him to keep going and "Keep Banging" ...

Ongoing Education Sessions 
Free online information sessions presented by Centre for Living Organ Donation
  • 1st Tuesday of the Month: Information for Potential Living Kidney Donors 
  • 2nd Tuesday of the Month: Finding a Living Donor (registrants will be able to access additional resources including Having Your Donor Find You, a free self-paced video series)
  • 3rd Tuesday of the Month: Financial Resources for Living Donors (PRELOD and other provincial reimbursement programs, employer support and more)
  • 4thTuesday of the Month: Information for Potential Living Liver Donors



Patient Library Corner
Read the latest issue of the Patient Library Newsletter. The English issue features a story submitted by our very own patient partner Charles Cook, as well as new e-books on vaccines, anxiety, stress management and living with a serious illness or chronic condition. A Chinese edition of the newsletter is available. 

RESEARCH CORNER

Below are links to selected articles on living organ donation and transplantation published within the last six months. If you have a suggestion email us.

Superior long-term outcome of Adult Living Donor Liver Transplantation A cumulative single-center cohort study with 20 years follow-up In a sample of 2,264 adult patients of Canada's largest transplant program, 1-, 10-, and 20-year patient and graft survival rates were significantly higher among those who received a living donor vs deceased donor liver transplant.

Sex Disparity in Liver Transplant and Access to Living Donation Women who are at greater risk of death while on the waitlist. Having a living donor improves access to a timely transplant. 

Evaluation of the Intention-to-Treat Benefit of Living Donation in Patients With Hepatocellular Carcinoma Awaiting a Liver Transplant Living donor liver transplant could potentially decrease the risk of death by 33% to 49% for liver cancer patients on the wait list.

A Quality Improvement Intervention to Enhance Access to Kidney Transplantation and Living Kidney Donation (EnAKT LKD) in Patients With Chronic Kidney Disease: Clinical Research Protocol of a Cluster-Randomized Clinical Trial Describes design of an Ontario trial to help patients complete more steps toward receiving a kidney transplant. The project will be rolled out to all Ontario transplant centres in 2021. Can-SOLVE CKD Network has developed a short video explaining the project.

Economic Consequences of Adult Living Kidney Donation: A Systematic Review  Reviews16 studies involving 6,158 donors in Canada, US and 5 other Western nations finds many kidney donors are undercompensated, with those in lower income households or needing to travel longer distances reporting the greatest financial hardship. A separate study published at the same time found that 1 in 4 Canadian living kidney donors incurred expenses beyond the $5,500 reimbursable limit with negative consequences for mental health-related quality of life. 

The Centre for Living Organ Donation at UHN
Toronto General Hospital | Ajmera Transplant Centre
585 University Ave, 9 MaRS-9115, Toronto, ON M5G 2N2 Canada
livingorgandonation@uhn.ca  | 416-340-5400
www.livingorgandonation.ca

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